The Brace

Thursday was a hard day. 

We arrived at dr roberts office at 815, we left the brace lady's office at 2 pm. Everything took hours longer than it was supposed to and caused a lot of issues.  I didn't get to work,  nobody ate anything,  it was insane.

But that's how it is sometimes I guess.  It was hard though and mostly due to the fact that no one had ever done this before. Dr roberts had put these casts on but not off. And Angela,  our brace lady, had never made an A frame brace. So yeah.

And I think we were all sad, none more than nochy, at how hard it is to adjust to the brace. He can hardly move again and couldn't do a lot of things he had already relearned  how to do.

And though it was amazing to take them off..... he can barely even move his legs, let alone support himself.

He refused school Friday,  but we made him go because it was his last day before we go on our vacation.

Today he cried when I put his brace back on after he went to the bathroom. He cried and said "isn't six weeks enough, why are you doing this to me". Man, straight to the heart.

But he'll get used to it, he'll get stronger, it just feels like a long road ahead.

Well wish us luck, tomorrow morning were off to the airport and disneyworld.  Hopefully my posts will get more positive once again.

Hopefully this vacation will be the uplift to our spirits that I think we all need right now.

Last night in a petrie cast

Can you believe it's been six weeks?

Well we can't.  Quite honestly the time flew by which is hopeful to all of you out there who are starting,  it really does become the new normal.

And I really believe that G-d did it this way on purpose in steps cuz I wouldn't have been able to handle it all otherwise. First complete activity rest, which we thought was so hard, then the Petrie casts for Sox weeks, which we thought would be crazy,  and now the brace for a year, which seems ridiculous, but maybe just maybe we'll be ok with that too....

So we'll let you know how it goes. We leave for Florida on sunday morning,  so stay tuned for brace pictures and ranting about putting a disabled child on a plane rants.....

When I went to pick up nochy from school today I saw something new, everyone had given the cast a bonvoyage by signing it, teachers, friends, aides, and so nochys dad and I signed it too.

Tomorrow is a special day for another reason to, it's our 15 year wedding anniversary. And thankfully I think the only reason we've been able to do this is because we have eachother. If we only knew all of the blessings and hurdles that would.come our way when we were young  and naive so many years ago....

Thank you everyone for your support, thank you G-d for holding us the whole way.

Let's see what tomorrow will bring...

Week 6, it ends and begins...

So here we are, a week away from when the cast comes off....

And in some ways, we're doing so good, I am shocked.

It's amazing what just becomes apart of your life when you do it for long enough.

Our days have their rhythm.  I drop noch off late, pick him up early, bring him up the stairs to our house and back down.

Devorah,  nochys big sister can take him to the bathroom and get him ready and into bed (including always remembering to prop up each ankle with a blanket or he'll wake up in the middle of the night screaming in pain if we forget).

It's just become life, and the time flew by, it's almost over.

That's the good, the hard is how clear it is to me now that life is not really about to change with the brace instead of the cast.

He will only be able to take it off at night to go up to his room, shower, go to the bathroom and get into bed. That's it. And possibly physical therapy,  and swimming once a week.

So this six week stint in a wheelchair will really be a year, and though I kinda intellectually knew that already, for some reason I was in denial until people started asking nochy if he's excited to get his casts off next week and he answered in the  affirmative.

So now we need to temper that, because it will be a touch easier, but not crazily.

I spoke to his teachers last night to make sure they were still ok, and I could hear that this was hard for them too though being the amazing people they are told me it's totally fine and they just want to make it work for nochy. But the classroom is small and he likes to run people over because he likes to do things independently.

And that's it for now.

Here we are smiling for the camera and on a trip to jewel. I forgot how crazy the whole thing looks until we go somewhere public like Jewel and people stare- its a little crazy.